Replay of Sunshine Summit Appearance

By Ben Brown

The Sunshine Summit, a livestreamed conversation series with podcasters and other creators organized by New Zealand’s Heather Welch, has been absolutely fantastic. Great guests, and I was fortunate to share the roster with them this past Monday. The replay of my appearance, in which Heather and I discuss Tourette’s Podcast and field questions from a livestream chatroom, is now up on YouTube.

Gotta give a lot of thanks to Heather for all the hard work she put into the summit and for asking me to be a part of it. Also giving huge thanks to everyone who participated in the chat and asked great questions.

Subsequent to the livestream, which on my side beamed from Tourette’s Podcast Studio, came requests for a studio tour, which will be in the works.

Ask Me Anything at the Sunshine Summit!

Please join me on Monday, Aug. 12, 2019 at 9 p.m. EDT for a great livestream conversation in which you can participate. It’ll be the Sunshine Summit, accessed at https://www.sunshinesummit.live/, where organizer and amazing podcaster Heather Welch of New Zealand will be talking with me and moderating a live chat that you should take part in. Ask me anything you want. Listen to the above announcement for details. Thanks!

-Ben Brown

Jaleesa Jenkins Appears on TV's 'The Employables'

By Ben Brown

One of the most potent guests ever to appear on Tourette's Podcast was just on an episode of A&E's "The Employables," the docuseries at the intersection of disabilities and job-hunting.

The episode, "Cursing with Confidence," follows Jaleesa Jenkins and her Tourette Syndrome through the search. (While TS gets the focus, Jaleesa does manage other disabilities discussed in Season 2, Episode 1 of Tourette's Podcast — and for real, you should hear it if you haven’t.)

Episodes of "The Employables" are viewable at aetv.com, though it might prompt you to log in via a TV provider. You can also see Jaleesa in the trailer for the show's current season.

After the airing, Jaleesa shared her thoughts about the appearance on Twitter. She warns the thread includes spoilers.

“For anyone who's watched it, I REALLY wanna hear your thoughts,” she said.

SEASON 3 FINALE! Episode 14 - To Any Average Viewer

If you watched the recent season of Survivor: Edge of Extinction, you'll recall notably energetic contestant Wendy Diaz. Wendy joins us on this episode, the finale to Season 3, and opens up about her life with Tourette Syndrome through rapid-pace honesty. We discuss her portrayal and how she thought the show handled her TS; Tourette hyperpower; aversion to sleep; social weirdness; strange takes about TS (from a large TV audience); being known for more than your TS; and trading tics, including a "sign of the cross" tic she ended up giving Ben. Plus: Great answers to the question about jury duty with TS; a Tourettic race-car driver; a thoughtful fundraiser; and something big that happened to Ben this past week. This episode closes out Season 3, but work is already underway on the next one, and there's plenty happening in the interim. Updates and more on this website.

Wendy explaining her TS on ‘Survivor: Edge of Extinction’ https://youtu.be/-EdpO32Rs6E

‘Survivor’ profile on Wendy https://www.youtube.com/watch?v=UtlBxUj43yU

Wendy’s shop, PixelThat http://pixelthatshop.com/index.html

Wendy on Instagram https://www.instagram.com/the_great_whendi/?hl=en

Wendy on Twitter https://twitter.com/BigWendy6

Roundup:

Website: https://www.tourettespodcast.com/

Twitter: https://twitter.com/TourettesPod

Instagram: https://www.instagram.com/tourettespodcast/

Support the podcast: https://www.patreon.com/tourettespodcast

Tourette’s Podcast Discussion Group: https://www.facebook.com/groups/664680327265761/

S3 - Episode 13 - Rusties and Ralphies Per Minute

An episode you'll love with guest Dylan Frost of the UK, whose story of Tourette Syndrome is fairly different than most. It’s led him to question convention while he works as an advocate (a prolific writer on Quora) for the community. He also brings a favorite analogy for what it's like living with the disorder. Plus: listener questions and a truly, solidly great TS art project.

Dylan Frost on Twitter 

Writing about how Tourettes Action helped him find funding for CBIT 

Roundup:

Website: https://www.tourettespodcast.com/   
Twitter: https://twitter.com/TourettesPod   
Instagram: https://www.instagram.com/tourettespodcast/   
Support the podcast: https://www.patreon.com/tourettespodcast
Tourette’s Podcast Discussion Group: https://www.facebook.com/groups/664680327265761/

S3 - Episode 12 - Imitating a Snake

By Ben Brown

Peter Zhao was born and raised through boyhood in China before he moved to the U.S. and became the affable, freestyle-rapping online presence many of you know as Fabulously_Tourette. Peter, while multitasking (finishing up a bowl of soup, later changing his child's diaper and performing other home activities during the conversation) takes us from his youth and early family dynamics to establishing himself in New York and later incorporating Tourette Syndrome into his persona. He used to struggle with aspects of it; he's now content. Peter also gives an interesting explanation of his coprolalia, discusses his own tic-management preferences, and talks about racial diversity in TS. A rewarding episode covering territory Tourette's Podcast hasn't hit before.

SENSORY NOTE: While it's an awesome conversation, there's some background noise in parts of this episode, as we caught our guest in his duties as a father caring for two children at his home. Sometimes, different background sounds from the phone call overlap and could sound a little chaotic to people sensitive to such things. That doesn't occur throughout the episode, but there are a few, limited parts that get a bit noisy.

Things mentioned:

Fabulously_Tourette (Peter) on Instagram

Study: The prevalence and epidemiology of Gilles de la Tourette syndrome. Part 2: tentative explanations for differing prevalence figures in GTS, including the possible effects of psychopathology, aetiology, cultural differences, and differing phenotypes. (Thanks, Dr. Conelea!)

Study: A National Profile of Tourette Syndrome, 2011–2012

Sunshine Summit August 2019 Livestream! Think of questions to ask me on Aug. 12 at 9 p.m EDT.

Roundup:

Website: https://www.tourettespodcast.com/

Twitter: https://twitter.com/TourettesPod

Instagram: https://www.instagram.com/tourettespodcast/

Support the podcast: https://www.patreon.com/tourettespodcast

Tourette’s Podcast Discussion Group: https://www.facebook.com/groups/664680327265761/

Opening Up For Awareness Month

By Ben Brown

I’ve seen some seriously strong advocacy moves since Tourette Awareness Month began on May 15. Some of my favorites come from people who’ve used the time period (until June 15) to open up publicly about having TS, provide info about what it is and how it applies to their lives, and invite questions from anyone wanting more.

I’d like to highlight this one from a Touretter named Cail, whose backstory is kind of similar to mine: had TS since childhood and got on cloaking its noticeability rather than living with it openly (or publicly or freely or naturally, whatever the right word is). Well, after Cail and his son were both recently diagnosed with ADHD, Cail considered the link with his Tourette Syndrome and sought further info. In the process, he found the podcast, related to the guests’ personal stories, and ended up making a bulk of silicone wristbands for awareness. According to his website, a good portion of the proceeds goes to the Tourette Association of America.

But then he thought over how he’d never opened up to the people in his life about having TS; he’d only told a select few. So he straight-up went for it on YouTube with a video, titled, “I have Tourette Syndrome.” It’s three-and-a-half minutes and smoothly humanizes the explanation of what Tourette Syndrome is. Thanks, Cail!

And thanks to the masses of you sharing similar stories. I know this is one of so many successful communications. Keep it going!