By Ben Brown
A few episodes ago, I mentioned a study that came out with, among other things, a recommendation to consider renaming Tourette Syndrome or doing away with the term, in part as a way to clear associated stigma. (The other reason stood in question as to whether TS is really worth breaking out as its own diagnosis, when “tic spectrum disorders” may better capture it and other tic diagnoses, according to the study’s authors.) With the help of Dr. Christine Conelea, Jaleesa Jenkins and Laura Beljaars, I was thankful to contribute to a published editorial response countering the concept as proposed. As an update, Laura on Monday shared a blogpost she'd written about the European Society for the Study of Tourette Syndrome’s May conference in Hannover, Germany, which opened debate on the merits of this if any. Thankfully, Laura joined in. Check out what she said; it's brief, organized, and certainly worth your time. Teaser: "Stigma changes through reappropriation, not through changing the name. This means identifying with the word Tourette, not pushing it away."
Here it is! My review of the debate on changing the name of Tourette Syndrome, during the ESSTS Conference in Hannover! The debate changed a lot for me, I hope I portrayed that well. I didn’t want to make it into a 3-hour reading session (I could have)😄 https://t.co/RnGIqIKFcR— Tourette Problems (@Touretteprobs) June 4, 2019